Your privacy and security are our highest priority.

We've built our platform with privacy-by-design principles to ensure your health information remains protected at every step.

Your data is protected.

De-identification

Your personally identifiable information is separated from your health data using new and advanced de-identification techniques:

  • Names, addresses, and contact information are stored separately from health data

  • Unique codes replace identifying information in stored health data

  • Only Joined Bio can re-connect your identity and only to contact you for studies

  • Researchers only receive completely de-identified information

We implement similar security standards used by financial institutions:

  • End-to-end encryption for all data transmission

  • Multi-factor authentication for all account access

Encryption

We strictly limit who can access your information:

  •  Secure, monitored data centers with redundant protections

  • Role-based access controls for all staff

  • Background checks for all employees with data access

  • Regular security training for our entire team

Controlled access

HIPAA compliance is at our core.

As a healthcare technology company, we adhere to all requirements of the Health Insurance Portability and Accountability Act (HIPAA) including:

  • Robust privacy policies and protocols

  • Strong security measures and safeguards

  • Ongoing risk assessments and policy enhancements

  • Secure partnerships through Business Associate Agreements

  • Comprehensive employee training and compliance oversight

Our privacy commitment

  • You are empowered.


    You control your participation:

    • Choose research that interests you

    • Decide what information to share

    • Update your preferences anytime

    • Delete your data whenever you wish.

  • You get transparency.


    We will provide you with:

    • Clear explanations of how your data will be used

    • Notifications when you match to studies

    • Plain-language consent process

  • Your identity is yours.


    Your identity is only used to:

    • Match you to relevant research opportunities

    • Facilitate your participation in studies you choose to join

    • Process your compensation

Our security promise

We treat your health information with the same care and respect we would want for our own families. Our commitment to privacy and security isn't just about compliance—it's fundamental to our mission of advancing medical research while respecting individual rights.

Privacy FAQs

  • Your privacy is our main concern. We ensure your data is kept secure and private, following HIPAA standards. Your health information is stored without personal details, so you cannot be identified.

  • No. Researchers only receive de-identified data and / or specimens. Your name, address, and other identifying information are never shared with researchers.

  • Only authorized Joined Bio staff can see your identifiable health information, and only when necessary to match you to studies or process your participation.

  • Yes. You can request deletion of your account and personal information at any time through your dashboard.

  • We use your health data to match you to relevant research studies and to provide de-identified data to researchers for approved studies you've consented to join.

  • Never. Your participation is completely private and never shared with insurance companies, employers, or other third parties.

  • We maintain your personal identifying information as long as you have an active account with us and you may request its deletion at any time.  De-identified data that has been provided as part of a research study may be retained indefinitely.