Your privacy and security are our highest priority.
We've built our platform with privacy-by-design principles to ensure your health information remains protected at every step.
Your privacy and security are our highest priority.
We've built our platform with privacy-by-design principles to ensure your health information remains protected at every step.
Trust in every data point.
Enterprise-grade security meets healthcare privacy standards to protect your personal information.
De-identification
We protect your identity through advanced de-identification processes that separate who you are from your health information:
- Personal details like names, addresses, and contact information are stored completely separate from your health data;
- Health records are assigned unique codes instead of identifying information;
- Only Joined Bio can reconnect your identity to your data, and only to match you about relevant studies; and
- Researchers receive fully de-identified data with no way to trace it back to you.
Encryption
We implement the same rigorous security standards trusted by major financial institutions:
- Data is encrypted end-to-end protecting it during every transmission;
- Email is verified ensuring secure account creation and access;
- Password requirements with regular update prompts keep accounts secure; and
- Automatic session timeouts for inactive accounts reduce accidental access.
Controlled access
We strictly control who can access your information through multiple layers of protection:
- Secure, monitored data centers with redundant safeguards and physical access restrictions;
- Role-based access controls ensure staff only see data necessary for their specific responsibilities;
- Comprehensive background checks required for all employees who access data; and
- Ongoing security training keeps our entire team current on best practices.
HIPAA compliance is at our core.
As a healthcare technology company, we adhere to all requirements of the Health Insurance Portability and Accountability Act (HIPAA) including:
- Robust privacy policies and protocols;
- Strong security measures and safeguards;
- Ongoing risk assessments and policy enhancements;
- Secure partnerships through Business Associate Agreements; and
- Comprehensive employee training and compliance oversight.
Our privacy commitment.
You are empowered.
You control your participation:
- Choose research that interests you.
- Decide what information to share.
- Update your preferences anytime.
- Delete your data whenever you wish.
You get transparency.
We will provide you with:
- Notifications when you match to studies.
- Clear explanations of how your data will be used.
- Plain-language consent process.
Your identity is yours.
Your identity is only used to:
- Match you to relevant research opportunities.
- Facilitate your participation in studies you choose to join.
- Process your compensation.
Our security promise.
We treat your health information with the same care and respect we would want for our own families. Our commitment to privacy and security isn't just about compliance—it's fundamental to our mission of advancing medical research while respecting individual rights.
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