Your Health, Your Way: Introducing Two New Features on Joined Bio

Two powerful updates designed around you, because your health is personal and matters to us!

Medical research has a participation problem, and it’s not about willingness. Most people who want to contribute to research are more than willing. The challenge is that no single place captures the full picture of someone’s health, which makes it difficult to connect the right participants with the right research.

Joined Bio is a research marketplace that connects people like you with life sciences organizations running studies that need participants. Whether a researcher needs biospecimens, survey responses, real-world health data, or participants for a clinical trial, Joined Bio matches them with consented individuals whose health profiles fit what the study requires. The more accurately your profile reflects your health, the better we can connect you to research that’s genuinely relevant to you, and the more meaningful your contribution becomes.

That’s why we built two new features, and why we think they matter.

The fragmentation problem

Your medical history is probably scattered across multiple providers, health systems, and patient portals that don’t share information with each other. If you see a specialist at one hospital and a primary care doctor somewhere else, those records likely live in two completely separate systems. Add a telehealth provider or an urgent care visit, and the picture gets even more fragmented.

And even if all those systems did talk to each other, there’s a whole layer of your health story that never makes it into any official record: the supplements you take, the family history your doctor noted once and never followed up on, the allergy you’ve managed for years, the medication you started recently. These details matter enormously to researchers trying to find the right participants for their studies.

That gap has real consequences. For you, it means your profile may not fully represent who you are as a patient. For researchers, it means they’re working with an incomplete picture. We built two new features to help close that gap.

See your complete medical history in one place

If you’ve connected your healthcare records to your Joined Bio account, you can now view them all in one place. No more logging into multiple patient portals to piece together your own health history. Your Complete Health Record pulls together information from all the healthcare systems you’ve connected, giving you a single, consolidated view right in your Joined Bio account.

If you see providers across different health systems, you know how fragmented that experience can feel. This feature won’t fix the broader healthcare system, but it will give you one place to see the full picture of your connected records, organized and accessible whenever you need them.

Tell us what your records don’t

Whether or not you’ve connected any healthcare records, you can now add health details directly to your profile through our Self-Reported Health Data feature. Current medications and supplements, allergies, family history, recent diagnoses — anything that gives a more complete picture of your health.

Think of it as filling in the gaps. Your connected records capture what’s been formally documented. Self-Reported Health Data captures the rest. Together, they create a profile that more accurately reflects how you live with your health, and that makes a real difference in the studies we’re able to match you to. The more complete your profile, the more likely we are to reach out about research opportunities that are genuinely relevant to you.

Why it matters

Every study on the Joined Bio platform is looking for specific participants, people with particular health histories, conditions, or backgrounds. When your profile is incomplete, you may be invisible to studies you’d actually qualify for and care about. These features exist to change that.

Research participation should feel like a two-way street. You share what makes you uniquely you, and in return, we work to connect you with opportunities that are worth your time. Participants on Joined Bio are compensated for their contributions, whether that’s completing a survey, providing a biospecimen, or sharing real-world health data. A more complete profile is the starting point for making that exchange as valuable as possible for everyone involved.

Ready to try it?

Log in at https://my.joined.bio/login and explore both features. It only takes a few minutes to connect your records or add some self-reported health details, and it could open the door to research opportunities you’d otherwise miss.

Not a Joined Bio participant yet? Sign up at www.joined.bio. It’s free to join, and your contributions, however you choose to make them, help move medical research forward in ways that matter.